Collapse in Three, two, one....

[lls_mutant]

Dear Trevor,

4:30 AM is NOT time to play. Thanks, sweetie.

Love,
Mom.

So, we went to the feeding team today for our initial evaluation. I think we saw 5 doctors and one nurse or something like that. It was rather exhausting, and I'm not sure how we feel about it. They think they can help us, and they think that Toby has some sensory processing issues. They've made some recommendations about how to proceed, mainly involving instituting a snack time and introducing new foods there, and the procedure for doing so for someone like him. They want us to keep giving him accepted foods for meals, so meals become pleasant, but make snack time the more difficult time. Makes sense, I guess.

They also want Toby to be seen by an occupational therapist and a developmental pediatrician. The wait time on these people is AMAZING. Probably 2-3 months for the therapist, and NINE months for the pediatrician. As annoying as this is to ME, I can only imagine how it must feel to, say, a mother with an autistic child. I mean, Toby is having issues, sure, but he has a very normal life. Maybe they have a shorter wait time for more severe cases. I hope so.

So, tomorrow we begin snack time, and head on over to our regular doctor to give him copies of the recommendations and ask for referrals, and perhaps see if he knows some other doctors that have shorter lead times. Hey- worth a shot.

I'll answer the 15 characters meme (anyone still want to play?) tomorrow or something, when I'm in a better mood :P

Comments

[aome.livejournal.com]

Thanks for the update.

Btw, if he might need OT you might consider getting him seen through Early Intervention services. (This is also something you get a rec for, via your pediatrician.) You might still have to wait a couple of months, but if he qualifies, then he'd get an hour of therapy - at your house - for free, until he no longer needs treatment or until he turns three, whichever comes first.

Did you see a speech therapist? They can work on oral sensory stuff, too.

[krabapple.livejournal.com]

I'm glad the visit went relatively well, at any rate! :) And from the sound of it, they are more or less backing up your approach at meal times, so I hope that helps you and Howard. I do think snack time makes sense, though I never would have thought about it.

The wait for developmental pediatricians IS insane -- at least around here, too. People wait up to a YEAR to see one. Apparently they are a rather rare species, but it kind of boggles my mind as to why.

But overall it sounds to me like everything is pretty resolvable, which is a good thing!